Our prayers are being answered!!!

The news straight from the dr’s notes:

Tumor was very difficult to classify. multiple reviews have concluded the same diagnosis. Pilomyxoid  astrocytoma.  Extremely similar to a low grade glioma, but very rare.  low grade gliomas are normally not aggressive but jamesons tumor hs acted different. (such as it has spread)

Starting treatment and see how he responds will be our guide to know how he is doing. The tumor has some mixed features… when you look under the microscope. Jamesons cells are dividing and it has spread making his tumor look/act more like a high grade tumor. therefore the recommendation is to treat it aggresively with more aggressive chemo.

Dr. Chaleff thinks it is curable with being aggressive with chemo.but he cant make any promises. watching him along the way and seeing how he responds will be critical to understand how he is responding. we may see clinical changes in him before we see changes on MRI. Plan fot tomorrow is do surgery. as he has recovered from surgery well we will start the chemo on tuesday. we will do two days of chemo. Goal is to have us home at the end of the week.roughly every 3 weeks inpatient chemo for a few days. he will be at risk for fever and infection. jameson will also be seen at clinic once a week every week. chemo will last about one year!treatment will be easier to tolerate than the other possible treatments previously discussed. no time spent in boston

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4 Comments » for Our prayers are being answered!!!
  1. Sarah Dube says:

    So sorry to hear yet another family is having to deal w/ this awful fight! My daughter was diagnosed w/ hepatoblastoma (liver cancer) last june, and had a liver transplant in Sept 2010. She is doing great! Never lose hope, our children are strong! BBCH is wonderful! I will keep him in my prayers. You can find me on FB, if you would like to be in touch w/ another cancer family. :) Sarah Dube

    • Kenya says:

      ONE day at a time, dear sister. I have found that I do best when I don’t think too far ahead. Focus on the next step and the next step only. If you try to plan it all out comelptely you will lose your freaky head. I too want to just have it all behind me, I want to just fly through all my chemo. Word of encouragment, I did not get good news until 3 weeks after my 4th round. YOUR path is unpredictable and comelptely different from anyone elses’s. Hang in there! XOXO

  2. Kinda McBride says:

    I saw this news story this morning and realized you were the family at the same table as my daughter last week in the hospital, decorating a gingerbread house. I’m very happy to see this post and I wish you all the best. I will keep Jameson, and all of you, in my prayers!

    • Sandy says:

      We are praying for you. This wasn’t the rleust we were hoping for. We pray you will feel the Lord holding you in the palm of His hand as He gives you strength only He can provide.Psalm 27 1 The LORD is my light and my salvation— whom shall I fear?The LORD is the stronghold of my life— of whom shall I be afraid? 2 When the wicked advance against me to devour me,it is my enemies and my foes who will stumble and fall.3 Though an army besiege me, my heart will not fear;though war break out against me, even then I will be confident. 4 One thing I ask from the LORD, this only do I seek:that I may dwell in the house of the LORD all the days of my life,to gaze on the beauty of the LORD and to seek him in his temple.5 For in the day of trouble he will keep me safe in his dwelling;he will hide me in the shelter of his sacred tent and set me high upon a rock.

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