The news straight from the dr’s notes:
Tumor was very difficult to classify. multiple reviews have concluded the same diagnosis. Pilomyxoid astrocytoma. Extremely similar to a low grade glioma, but very rare. low grade gliomas are normally not aggressive but jamesons tumor hs acted different. (such as it has spread)
Starting treatment and see how he responds will be our guide to know how he is doing. The tumor has some mixed features… when you look under the microscope. Jamesons cells are dividing and it has spread making his tumor look/act more like a high grade tumor. therefore the recommendation is to treat it aggresively with more aggressive chemo.
Dr. Chaleff thinks it is curable with being aggressive with chemo.but he cant make any promises. watching him along the way and seeing how he responds will be critical to understand how he is responding. we may see clinical changes in him before we see changes on MRI. Plan fot tomorrow is do surgery. as he has recovered from surgery well we will start the chemo on tuesday. we will do two days of chemo. Goal is to have us home at the end of the week.roughly every 3 weeks inpatient chemo for a few days. he will be at risk for fever and infection. jameson will also be seen at clinic once a week every week. chemo will last about one year!treatment will be easier to tolerate than the other possible treatments previously discussed. no time spent in boston