Medulloblastoma

Three days after the surgery one of his incisions started to leak spinal fluid and he had to have an emergency surgery the next morning to put a shunt in to drain the spinal fluid from his brain to his stomach. About 4 days after this the Oncologist returns with more news, they have preliminary results it’s a “medulloblastoma” a rare cancerous and very aggressive tumor. The next step was to get a feeding tube placed down his nose to bulk him up for future possible chemotherapy. He now has his good days and bad days struggling with nausea and vomiting everyday of his life.

As we wait for the pathology ‘s final report to come we are planning a third surgery to implant a semi-permanent pick to deliver the life saving medicines as well as a “g” tube to feed him with during our short break home for Christmas. So many people have been helping us and we are so thankful for you all as well as Jameson is thankful for everything everyone has done and will do. But to anyone who has met Jameson they know he is a fighter just by the way he holds his little fists up to his little cheeks as he sleeps. To be honest he is the strongest man I know and he is yet to see his first birthday.

Posted in Uncategorized
3 Comments » for Medulloblastoma
  1. Diana says:

    My prayers are with you and Jameson!! Lora is a friend of my moms and our families here in Florida are all praying for Jameson!

  2. megan closson says:

    Justin,

    Thinking of you and your family during these difficult times. Cherish every moment and stay strong every day. Sending prayers your way.

  3. Jessica Bonham says:

    Hey Justin,

    So sorry to hear about your little one. I have a cousin who had cancer as an infant and it made him so tough he’s now a star football player! It makes every journey faced in life that much easier. I am thinking of y’all and wish your son health, strength and Godspeed :) Take care of yourself as well!

Leave a Reply

Your email address will not be published. Required fields are marked *

*

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>